Money Raised to Help Fight Rare Disease
Anthony Bumbaco for local2 sault ste. marie
August 4th, 2012 at 7:32am | Last Updated at 7:36am
All proceeds from this volunteer driven event including the $10.00 registration fee goes towards the Canadian F.O.P Network.
Currently there are 2 individuals in the Sault who suffer from the rare disease. How rare is this disease you ask? Well, only 1 in every 2 million people suffers from the disease and a grand total of 2500 worldwide.
For those unfamiliar with the disease, Fibrodysplasia Ossificans Progressiva is genetic disorder that essentially involves the shifting of muscle tissue and connective muscle tissue into bone, forming ossified bone outside of the skeleton that constrains movement. The disease can be evident at birth or may not become apparent for a number of years as a child develops.
There is currently no treatment or surgical options for those that suffer from F.O.P. But research is on going to find a treatment for this disease and every contribution will help.
So come out on August 11th to show your support and enjoy some exercise with friends and family in our community in hopes that someday a cure can be found for F.O.P.
For more information please contact Miranda Stadnisky Mayhew by phone at (705) 257-8331 or by email at email@example.com.